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Jeff passed away on 11 April 2017 after more than six years battling a rare neurodegenerative illness called Progressive Supranuclear Palsy. Medical experts do not know what causes PSP and there is no known cure. PSP affects multiple core functions, including balance, movement, vision, speech and swallowing.

By the end, PSP meant Jeff could no longer see, no longer talk, no longer move, no longer eat, no longer drink. Yet he remained fully engaged in life and even enjoyed it, finding pleasure in his wife's company, listening to his daughter read his favourite Western novels, hearing his son's updates on how his Manchester United were doing in the Premier League, being ribbed by his brother or holding his grandchildren's hands. He was still able to interact in the final days, raising an eyebrow to say 'yes'. His courage and determination inspired everyone who had the privilege of meeting him and caring for him.

The PSP Association funds research into the condition and provides support to families and medical professionals in caring for people with PSP. We found their free advice and information invaluable because the condition is so rare that most healthcare professionals do not know about it. For example, we called their free helpline frequently, asking questions about issues ranging from symptoms to communication aids.

Any donation you can make will make a difference for families living with this cruel illness - and will contribute to the ultimate aim of understanding the causes and finding a cure.